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The Facts Book
Each book in this popular series offers practical advice about an illness or condition in a clear and accessible style, written by leading authorities in the field.
When the first edition of Myotonic Dystrophy: "The Facts" was published in 2002, it was widely appreciated by families, support groups, professionals, and reviewers for its simple and clear approach to key practical questions.
This new edition retains the same successful structure, but also includes: new material resulting from the recognition of the distinct ‘type 2’ Myotonic dystrophy; which had only just been identified at the time of the first edition; further explanations of the of the advances in basic understanding of Myotonic dystrophy; and additional coverage of the new approaches to the therapy and management of the condition, including discussion of the new research that is on-going worldwide.
New to this edition: ‘key points’ ‘frequently asked questions’ and up to date contact details for worldwide support groups.
Author : Prof Sir Peter S Harper.
Price per copy £13 non members and £5 for members.
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Latest News & Events
- A First for DM.
Evidence of how knowledge and awareness of DM is becoming consolidated amongst professionals working in the field. read more... - STEM CELLS GIVE INSIGHT INTO MYOTONIC DYSTROPHY
Researchers studying human embryonic stems cells have found two new genes that may be involved in causing some of the symptoms of myotonic dystrophy read more... - An MDSG Appetiser!!!
The 2011 Conference saw brisk sales of MDSG's new Recipe Book. Obtain a copy from the Office price £7 including postage. Thanks to Linda Perry and her contributors! read more... - 'Chasing Gold'
'Chasing Gold' read more... - 'ENCOURAGING' NEW RESEARCH FOR MYOTONIC DYSTROPHY
Researchers at the University of Valencia in Spain recently identified a new way to block the genetic change that causes myotonic dystrophy Type 1 read more... - HALF + FIVE TENTHS = FULL MARATHON FAMILY EFFORT
On Sunday 11th September 2011, Dr Jeremy Rhodes, his wife Dr Helen Brownlee, their children ran in the Robin Hood Nottingham Marathon. read more... - MARGARET JOINS THE LEGIONS...
Margaret sets out to walk five miles along the Hadrian's Wall... read more... - Dutch Government Money for Myotonic Dystrophy Research...
read more... - BRIDGE COMES UP TRUMPS
MDSG Directors John and Sue Kelly and their friends ran An Evening of Bridge in Damerham Village. read more... - MDSG GRANT HELPS NATIONAL REGISTRY
MDSG has provided a grant of £7,500... read more... - CONGRATULATIONS TO THE DAVISONS
THE magic of the season is sparkling a little brighter for the Davison family – as they celebrate their best Christmas ever. read more... - INTERNATIONAL CONFERENCE ‘BEST IDMC TO DATE’
The 8th biennial meeting of scientists and clinicians of the International Myotonic Dystrophy Consortium,held in Florida in December 2011 was felt by many to be the best IDMC so far. read more... - Backing Myotonic Dystrophy Conference
Backing Myotonic Dystrophy Conference read more... - RUN FOR OUR MONEY?
Are you interested in running to raise money for MDSG? read more... - Linzi Sky Dives for MDSG
On 25th February Linzi will be doing a sponsored tandem skydive to raise funds and awareness for MDSG. read more... - GOOD NEWS FOR THE SOUTH WEST
A new twice-yearly Network News is being published, giving lots of information and advice to those with neuromuscular conditions read more... - MDSG's TORCHBEARER....
MDSG's National Co-Ordinator, Mrs Margaret Bowler, has been chosen to be one of the 8000 bearers of the Olympic Torch as it is carried around Britain on its way to the Olympic Stadium.... read more... - Marathon Mum runs for Myotonic Dystrophy....
Sophie Mill, the daughter of MDSG Directors John and Sue Kelly, and mother of three, completed her second London Marathon last Sunday [22nd April]. read more... - HOLED OUT – TWICE!
For the second year Pat O'Sullivan (pictured, centre) has rallied his friends to help raise funds for DM Research. read more... - BODEN WELL!
Once again the Boden collection attracted many local visitors to a beautiful medieval barn, owned by a good friend of MDSG directors John and Sue kelly. read more...
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